By Wylie Burke, Kelly A. Edwards, Sara Goering, Suzanne Holland, Susan Brown Trinidad
This ebook explores implicit offerings made via researchers, coverage makers, and funders relating to who advantages from society's funding in healthiness study. The authors concentration particularly on genetic study and consider no matter if such study has a tendency to minimize or exacerbate latest future health disparities. utilizing case examples to demonstrate the problems, the authors hint the trail of genetics learn from discovery, via improvement and supply, to future health results. issues comprise breast melanoma screening and remedy, autism learn, pharmacogenetics, prenatal trying out, child screening, and adolescence suicide prevention. each one bankruptcy emphasizes the societal context of genetic examine and illustrates how technological know-how may perhaps swap if realization have been paid to the wishes of marginalized populations. Written by means of specialists in genetics, well-being, and philosophy, this publication argues that the clinical company has a accountability to answer group must guarantee that examine suggestions in achieving a lot wanted wellbeing and fitness impacts.
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Extra info for Achieving Justice in Genomic Translation: Re-Thinking the Pathway to Benefit
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For example, testing for breast cancer susceptibility is extremely expensive, largely due to the patent protection that Myriad Genetics, the test developer, currently enjoys. This testing has been aggressively marketed to physicians and to potential patients, but the price tag permits access only for relatively wealthy women. The aggressive marketing generates demand for a test that has limited clinical utility for most women (Mouchawar et al. 2005). As a result, women may struggle to pay for the test, when neither they nor their physician realizes that they are not appropriate candidates for testing.